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Out of the (Down syndrome) Box

I rolled over this morning and noticed it on the floor, an old VHS tape, “Educating Peter” scribbled on the label. I really should shove that in the box, I thought, rolling back the other way to avoid...

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Small Kindnesses

The other day I opened Sophie’s school backpack and noticed she had a new set of folders — shiny, carefully labeled with each of her classes and in her favorite themes, kittens and nail polish. Her...

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End the R Word — And the Attitude

I don’t hear it so much anymore, so I was surprised. “I’m so retarded!” a brand-new employee said the other day, struggling to open a door with a new key card. We were coming back from lunch, and as...

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A Letter to My Daughter (Who Happens to Have Down syndrome) on Her 13th Birthday

Dear Sophie, You know, I have been writing this blog for the last 8 years — I started it on your fifth birthday, to document your year in kindergarten — but I’m not sure I’ve ever actually written to...

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It Takes a Village to Raise a Mom. And a Book.

I’m going to begin this blog post the way I’ve started countless blog posts before. I’m going to to tell you a secret. Book publishing is hard. Okay, that might not be much of a surprise, but it bears...

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“I have Down syndrome,” she Snapchatted the boy.

Sophie and I got our nails done on Saturday. Hers never take as long as mine so after she’d finished, she parked herself at the front desk of the salon and flirted with the young man who books...

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